faithworks wrote:Mr. Glenn could you please give a suggestion on my doctors opinion ??? Could you please tell me whether I am on the right track ??? Thanks.
Everything your doctor has said is consistent with what I know to be current understanding and treatment of DLK scaring. Depending upon exactly where the scaring is located, Phototherapeutic Keratectomy (PTK) may laser away the scared tissue without greatly changing your refractive error. The only thing that didn’t seem to be mentioned was topical Mitomycin C, but whether or not this would be appropriate depends upon the location and type of scaring.
Your epithelium, the outermost layer of corneal cells, will try to reform to resolve the mudcrack effect of the corneal scaring. No prediction on how much success, but you would be amazed at what epithelium can do.
Your brain will start to ignore the bad vision and "look around" the problem area. This is exactly like the blind spot that we all have where the optic nerve enters the eye. We don't "see" the blind spot because the brain has learned to ignore it. This is neural adaptation at its best. Even though there may be no change in the actual haze, your vision can improve.
When something like this happens it is difficult not to have your faith in your doctor (or the procedure) shaken to your bones. To be sure you are on the right track and for some peace of mind, I recommend you seek a second opinion with a corneal specialist. What you have related to us sounds like your doctor is current, but another perspective may be helpful.
Something else to expect: you are going to beat yourself up about this. Expect it. It’s normal. This is elective surgery and now that it has gone the wrong direction it is really, really easy to second guess yourself. It is easy to get depressed about this. Expect it. That’s normal too. These emotional responses will not help your situation, but they are absolutely to be expected when going through something like this. Seek a friend or professional for help if/when it gets too tough. There is no need to go through this alone or without the tools that may help you through the rougher times. You have us here too. We may just be a collection of bits and bytes, but we care too. You will need to put your nom de plume
to the test.
You are also going to need to be patient. Several published case studies have shown that it can take 12-18 months for DLK scaring to clear and get the patient back to 20/20.
Please do keep this forum informed as things progress. It is rare that someone reaches Stage 4 DLK these days and many will be very interested in your recovery.