Disgusted

Post your questions and start your research in this forum if more than three months ago you had any type of surgery to reduce the need for glasses and contacts.

Disgusted

Postby Betty39 » Wed Mar 07, 2007 2:21 am

I got a call from the so called lasik coordinator/consultant from the office that did my surgery. I told her that I had been to the corneal specialist they referred me to once and going back again tomorrow. I told her that he prescribed Restasis and asked why it was that the doctor she works for didn't prescribe it for me months ago. She said,"Oh you can buy that over the counter." I go, "Um, no you can't it's a prescription drop." Then I go on to explain to her about the tiny channels that carry tears to your eyes and how inflamation effects them. She sounded like this was all news to her. I have lost total confidence in this doctor. I am wondering now if upon examining my eyes pre-surgery if he would have known what dry eyes or boarderline dry eyes even look like. He has been doing refractive surgery for 18 years so I assumed he knew what he was doing. Now I just wonder. My vision is good so he must have known something but how is it that someone who had no dry eye symptoms could come out so messed up? As for the consultant...what an idiot. I know more about this surgery and it's possible outcomes than she does just from being here and researching on the internet. She needs to educate her self. She is also the one that tells all their patients not to use their preservative free drops too much because they might get too used to them. In fact right after the surgery she told me to use them only if it was absolutely necessary. Before I knew better...just days after surgery I let my eyes burn like hell before I broke down and used my tears. We all know what a mistake that was.
Now I have this great job opportunity with a huge pay increase and I am scared to take it because it will involve me learning new skills and with burning eyes it will be very hard to concentrate.
Nobody can tell me what the future holds. I need to find some place that can help me learn to deal with chronic pain. I am trying to be patient with the Restasis and a few days ago felt like it might be improving but today is a bad eye day.
I guess I need counseling to help me deal with the fact I wrecked my life. I used to be a positive, happy person. This has sure changed me.
Okay I'm done, thanks for letting me vent.
Betty39
 
Posts: 130
Joined: Thu Nov 02, 2006 11:21 pm
Location: Ventura CA

Postby LasikExpert » Wed Mar 07, 2007 3:03 am

According to the manufacturer, Restasis takes about 90 days to become fully effective.

Yes, it can be very frustrating when you went in to reduce your need for glasses and end up with a problem like this. Very frustrating, but try to keep perspective.

It may be that your surgeon is an excellent surgeon, but relies on staff and technicians that are less than excellent. The quality of the staff and technicians always reflect on the doctor, and ultimately these issues are the responsibility of the doctor.

I highly recommend that you suggest the refractive surgery coordinator visit this forum. She may find valuable information from reviewing the patient concerns.
Glenn Hagele
Volunteer Executive Director
USAEyes

Lasik Info &
Lasik Doctor Certification

I am not a doctor.
LasikExpert
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Postby DryEye » Thu Mar 08, 2007 3:36 am

Betty:
Don't dispair and allow yourself to get down.
I had a hard time with my lasik since last June and finally decided to go up the food chain so to speak and see a highly regarded lasik surgeon.
I am glad I did because for the first time I understand my situation.
I believe that is what you need to do because at least then you will have peace of mind and a gameplan for the future.
I went out of state for mine and was very happy after meeting with him.
I don't believe I can mention in this forumn who it was but it is one of the doctors on this site.
I had another one in mind that is not on this site, but after meeting with this one I am content with the answers I received.
I wasn't getting the answers or help I needed from the one who did my lasik and I knew that someone out there had to have the answers.
At least now I can move forward and decide what I want to do.
If need be cut your losses and move on in order to find your answers & take that job - things will get better for you.
DryEye
 
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Postby Betty39 » Fri Mar 09, 2007 12:18 am

Thank you Glenn and Dryeye for your responses.
I went back to the corneal specialist yesterday. It's costing me big bucks to see him but he doesn't take my HMO and I feel he is worth it. I wish I had had him do my surgery in the first place. Anyway, he says although I haven't felt a big improvement he sees an improvement in my eyes. I think he said the lipid layer was higher? I think that is what he said. And he put more temporary plugs in my eyes and said they would disolve in a week so really pay attention to see if it helps this time along with the Restasis. I do feel less dry today but I don't know if it is from the plugs or if its just a good eye day. He also gave me this pep talk about how the mind effects the body and how I can't lose hope. I wasn't expecting that but I appreciate it. He can't remember having anyone with dry eye from Lasik go beyond the first year mark without having it resolve. That was encouraging too.
I am trying to get optomistic, it's just hard after 5 months but I am going to try.
Betty39
 
Posts: 130
Joined: Thu Nov 02, 2006 11:21 pm
Location: Ventura CA

Postby DryEye » Fri Mar 09, 2007 12:27 am

Betty:
Spring is coming and I bet your dry eye(s) will be getting better right along with the 6 or 7 month mark. A year is a long time, so try telling yourself not to worry about it until the 1 year mark. I to go to a corneal specialist after lasik and helped a great deal in getting me through my first 6 months.
Your mindframe is a big difference, so try getting all your worries and fears out on the table and get past them - it sounds like your close.
The best thing for me lateley was going on the offensive and researching who I thought were the best surgeons in the country and saying to myself if things don't get better I am going to one of them for his opinion. Glad I did because I didn;t understand my situation until I did go. Now I can move forward and ask the right questions and hopefully make the right decisions. I just posted a couple of questions for Glenn under Higher Order Aberrations after seeing the latest opinion.
Whats done is done - I know it costs money and time, but moving forward and working toward resolving it will eventually get you in a place you can live with.
& Take that Job!
DryEye
 
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Postby Betty39 » Fri Mar 09, 2007 12:35 am

Thankyou Dryeye for the words of hope :)
I don't know what I would have done if I didn't fine this site. I don't even want to think about how lost I would be.

Glenn, you are doing great work here and are making such a difference in people's life. I can't express how greatful I am for your opinions and the opinions of other posters here.

Thanks so much.
Betty39
 
Posts: 130
Joined: Thu Nov 02, 2006 11:21 pm
Location: Ventura CA

Postby LasikExpert » Fri Mar 09, 2007 12:42 am

I'm delighted we are able to help.
Glenn Hagele
Volunteer Executive Director
USAEyes

Lasik Info &
Lasik Doctor Certification

I am not a doctor.
LasikExpert
Site Admin
 
Posts: 3309
Joined: Fri May 12, 2006 6:43 am
Location: California

Postby peakaboo » Sat Mar 10, 2007 1:25 am

Hi Betty,

Hang in there...in a strange kind of way, I look forward to your posts because they remind me how bad my eyes had been after lasik in July. I'm finishing 4 months of Restasis and although my eyes still feel a little dry here and there, they are sooo much better than they were a few months ago. The morning is the worst, and it takes maybe 30 minutes once I wake up to get a decent tear film going.

One thing I've been doing with the Restasis is waiting until after I take my morning shower to put the drops in. WHen I wake up, my eyes are really really dry, but the steam in the shower helps tremendously. Another 30 minutes of getting ready, and I'll put the Restasis in. I think the steam could rinse out or dilute the Restasis if I put the drops in before my shower. I can now go pretty much the whole day without any drops, but at night I feel the urge to put in some Systane if they're feeling dry or if they sting a little. Before bed I'll put in the Restasis again. I use two drops per eye, and can get a whole day (8 drops total) out of a vial.

I'm still taking the flaxseed oil (1000mg 3 times a day) and have a humidifier going at night to keep the bedroom within the 30-40% range.

Vision is still not perfect, but I'm close to 20/25 in both eyes I think. Another few months on the Restasis, and more humid weather conditions for spring and summer should do the trick. I'm hoping your eyes start to feel better soon. Hang in there...I'm sure you and I are both slow healers and are the exceptions to the 6 month rule, but I still have confidence that the end result will be worth it.
peakaboo
 
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Joined: Wed Jul 12, 2006 11:55 pm

Postby Betty39 » Mon Mar 12, 2007 10:17 pm

Thanks Peekaboo :)

I am really working on keeping positive about this whole experience. It is hard but I'm trying.

I do put the Restasis in after my shower like you suggested. I think you are right that doing it before probably would wash it out.

So you are using 2 drops per eye at each application? I was told to do 1 drop per eye. I will ask my corneal specialist about that.

I am glad you are doing better. I hope in a few months I will be where you are now.
Betty39
 
Posts: 130
Joined: Thu Nov 02, 2006 11:21 pm
Location: Ventura CA

Postby peakaboo » Tue Mar 13, 2007 1:06 am

Yes, I do 2 drops per eye per application...mostly because when I do 1 drop, it doesn't feel as if I'm covering the whole eye. Also, sometimes the first drop feels like a partial drop...like maybe there's a bubble stuck in the tip of the vial. I feel like if I only put one drop and it turns out to be a partial drop, that I'm shortchanging myself on the prescription. I guess in my mind, the stuff is expensive and if use the whole vial over 2 applications, the excess will drop out anyway but at least I'm getting adequate coverage on the cornea. I haven't checked with my surgeon about an excess half-drop to drop, but I guess it couldn't hurt to ask.
peakaboo
 
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